Welcome to Prader-Willi Syndrome!

You have found the answers to your child's characteristics with the diagnosis. Now, you have questions on what their future will be like and are there resources out there for parents with a child with Prader-Willi Syndrome. What diet and food storage approaches work best are among the questions out there. What are the current treatments out there? There are many different support groups out there on the state and national level. I have included some resources out there on the web to help you, but these websites are not associated with our organization.

Prader-Willi Association: www.pwsausa.org
International Prader-Willi Syndrome Association: www.ipwso.org
Current Clinical Trials: www.clinicaltrials.gov
Foundation for Prader-Willi Research: www.fpwr.org
Connecting the PWS Dots: www.pwsdots.org
PWS Notes: www.pwsnotes.org

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