You heard the doctor give the diagnosis of Spina Bifida to your baby. You began to worry about the
implications on your child's future. Then, your mind shifted to the available medical treatment options
available at this time to help your baby. I will share some resources not associated with our organization
that you can find more information and support about the condition.
Association for Spina Bifida and Hydrocephalus: www.asbah.org
Current Clinical Trials: www.clinicaltrials.gov
Easter Seals: www.easterseals.com
International Federation for Spina Bifida and Hydrocephalus: www.ifglobal.org
NICHCY Fact Sheet: www.nichcy.org/pubs/factshe/fs12txt.htm
Spina Bifida Association: www.sbaa.org
Spina Bifida Family Support: www.spinabifidasupport.com
Spina Bifida Moms Blog: spinabifidamoms.blogspot.com
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